Learning Disability Support

This Page is dedicated to Contacts for Learning Disability Support Groups.

Angelman UK

ASSERT is a United Kingdom Based Support Group. 

Staffed by volunteers who have direct contact with people who have Angelman Syndrome. The Majority of the Trustees are parents or relatives of Children or Adults with Angelman Syndrome. 

Website: www.angelmanuk.org

Address: 

ASSERT 

PO Box 13694

Mussellburgh

EH21 6XZ

Angelman UK 

PO Box 4962

Nuneaton

CV119FD.

- Support Line Tel: 0300 999 0102

Autism

The National Autistic Society exists to champion the rights and interests of all people with Autism and to ensure that they and their families receive quality services appropriate to their needs. The Website includes information about Autism and Asperger Syndrome, the NAS and its services and activities. 

Telephone: 020 7833 2299

Fax: 020 7833 9666

Email: Nas@nas.org.uk

Website: www.nas.org.uk

Address:

The National Autistic Society

393 City Road

London

EC1V 1NG

Cru-Du-Chat

This Support Group:

  • Provides Support and Friendship for families and carers throughout Britain
  • Raises awareness of Cru-Du-Chat Syndrome amongst the Medical Profession and the Public.
  • Raises funds to promote research through carefully selected projects.
  • Gives information and advice to families and professionals
  • Publishes a newsletter with general items of interest for families and carers.

Email: angie@criduchat.co.uk

Website: www.cridchat.u-net.com

Edwards

S.O.F.T UK provides support for families affected by Patau's Syndrome (Trisomy 13), Edward's Syndrome (Trisomy 18), Partial Trisomy, Mosaicism, Rings, Translocation, Deletion, and related Disorders.

Telephone: 0121 351 3122

Email: Enquiries@soft.org.uk

Website: www.soft.org.uk

Address:

SOFT UK

48 Froggatts Ride

Walmley

Sutton Coldfield

B76 2TQ

Fragile X

This society aims to;

  • Provide support and information for Fragile X families from those who share and understand their concerns and needs.
  • Educate, inform and advise the public and professional people about the prevalence and nature of Fragile X in order to raises awareness and understanding of the syndrome and improve the care pf all people affected by Fragile X
  • Encourage research into all aspects of the syndrome and publicise the results

Telephone: 01371 875 100

Email: Info@fragilex.org.uk

Website: www.fragilex.org.uk

Address:

The Fragile X Society

Rood End House

6 Stortford Road

Great Dunmow, Essex

CM6 1DA.

Prader-Willi

A Registered Charity and the only organisation in the UK which is dedicated to supporting people with Prader-Willi Syndrome (PWS), their families, carers, and the professionals who work with them.

Telephone: 01332 365 676

Fax: 01332 360 401

Email: Admin@pwsa-uk.demon.co.uk

Website: www.pwsa.co.uk

Address:

PWSA (UK)

125a London Road

Derby

DE1 2QQ

Turner's Syndrome

The Society Provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis.

Telephone: 01389 380 385

Fax: 01389 380 384

Email: Turner.Syndrome@tss.org.uk

Website: www.tss.org.uk

Address:

The Turners Syndrome Support Society (UK)

12 Irving Quadrant

Hardgate 

Clydebank

G81 6AZ

Down's Syndrome

This society strives in "Helping people with Down's Syndrome to live full and rewarding lives. The only organisation in this country focusing solely on all aspects of living successfully with Down's Syndrome, their families and carers, as well as being a resource for interested professionals. We strive to improve knowledge of the condition. We champion the rights of people with Down's Syndrome". 

Telephone: 0845 230 0372

Fax: 0845 230 0373

Website: www.downs-syndrome.org.uk

Email: info@downs-syndrome.org.uk

Address:

Langdon Down Centre

2A Langdon Park

Teddington

TW11 9

 

Surgery Image

Contact Us

Sefton Park Medical Centre
Sefton Park Medical Centre
Smithdown Road
Liverpool
Merseyside
L15 2LQ
Tel: 0151 295 8700
Fax: 0151 734 1321